“CDH Australia are just simply amazing, and without them, all of us families facing the CDH rollercoaster would potentially be alone."
The CDH rollercoaster brings with it an enormous magnitude of feelings, emotions and the unknown. But everyone you speak to in the forums, that you personally meet, that you become close to, understands it all. They understand why you randomly start crying, why every trip to the hospital even now, still causes anxiety, why you worry every time the smallest thing seems to be wrong with your child. Everything is normalised, you are not judged. It isn't just your CDHer who is welcomed with open arms but your whole family. CDH Australia is there for those who grieve after the most unthinkable loss happens, for those who celebrate their child leaving the hospital in their arms.
When I think about what CDH Australia means to me/my family, there is a multitude of responses. They are our saving grace through the storm. They are an organisation so dedicated to those who link in that you can never thank them enough for all that they do. CDH Australia are our family. They are who I want to share our son’s highlights and his challenges with. They are who I turn to when I feel lost, scared, and unsure. CDH Australia are just simply amazing, and without them, all of us families facing the CDH rollercoaster would potentially be alone.
Chantelle, mum of CDHer Noah