Noah's Family

 


“CDH Australia are just simply amazing, and without them, all of us families facing the CDH rollercoaster would potentially be alone."


The CDH rollercoaster brings with it an enormous magnitude of feelings, emotions and the unknown. But everyone you speak to in the forums, that you personally meet, that you become close to, understands it all. They understand why you randomly start crying, why every trip to the hospital even now, still causes anxiety, why you worry every time the smallest thing seems to be wrong with your child. Everything is normalised, you are not judged. It isn't just your CDHer who is welcomed with open arms but your whole family. CDH Australia is there for those who grieve after the most unthinkable loss happens, for those who celebrate their child leaving the hospital in their arms.

When I think about what CDH Australia means to me/my family, there is a multitude of responses. They are our saving grace through the storm. They are an organisation so dedicated to those who link in that you can never thank them enough for all that they do. CDH Australia are our family. They are who I want to share our son’s highlights and his challenges with. They are who I turn to when I feel lost, scared, and unsure. CDH Australia are just simply amazing, and without them, all of us families facing the CDH rollercoaster would potentially be alone.  
Chantelle, mum of CDHer Noah
 

Arabella's Family

 


“I have been given hope, strength and courage in the midst of darkness and despair. They are my stars on the darkest nights, the calm amongst the storm and the rainbow through the rain."


CDH Australia has meant that I haven’t had to face this journey alone. I have been given hope, strength and courage in the midst of darkness and despair. They are my stars on the darkest nights, the calm amongst the storm and the rainbow through the rain. 
 
Through text, phone, facebook and email we are never alone and we are able to reach out whenever we need, no matter where we are. The support, guidance, words of comfort and understanding ease the burden we carry every day and help us keep on moving forward. It is somewhere safe where we can freely express our feelings and emotions without criticism or judgement.

Family is a group experience of love and support and that is what CDH Australia is to me…..family. We are a group of people from all different walks of life but we have all been brought together by one single medical condition. The CDH journey is made easier with the support of this family. It is said that the family that grieves together, heals together. 
Carmel, mum of angel CDHer Arabella